What It’s Like To Be 21 With Asherman’s Syndrome

Name: Anonymous

Age: 21

Current city you live in: Los Angeles, CA

Occupation: Student

What condition/ailment are you living with?

I’m living with Asherman’s Syndrome.

Can you give us a little background on the condition? What are the symptoms?

Asherman’s Syndrome is scarring or adhesions on the uterus caused by a D&C from an incomplete miscarriage or an abortion. In my case, an abortion. Symptoms can include lighter or no periods, painful cramping during periods and infertility. I have painful periods because the scarring in my uterus blocks the blood from exiting and I am now infertile.

When were you diagnosed?

About 5 months ago.

Were you already experiencing symptoms when you were diagnosed?

Yes, I had uncharacteristically painful periods after my abortion and when I went to see a new doctor they did a hysteroscopy when they suspected it might be Asherman’s Syndrome.

How does this condition affect your life?

The condition only truly affects me when I get my period. My cramps are extremely painful and require strong pain medication

Long term?

I will need to get surgery to hopefully remove some of the scarring. And even if the surgery is successful, it is unlikely that I will ever be able to have children.

Does it require medication? Does the medication have side effects?

I have pain pills for the intense cramps. They can make me very loopy and high.

What is the hardest part of having the condition for you personally?

I never wanted children, but the hardest part about this condition, besides the pain, is losing my choice to have children if I ever did change my mind. I feel like it’s a pretty fucking cruel irony sometimes, that I lost my ability to have children due to a complication from an abortion.

How does this condition affect you differently being younger compared to those who are diagnosed when they’re older?

I will never have the option to have my own children.

What do you do personally to cope?

Honestly, I try not to think about it. If my pain pills don’t work (sometimes they aren’t strong enough) I smoke a bunch of weed. I try to focus on the doors that have opened in my life now that I can count children out of my future.

Gimme More Health

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