What It’s Like To Be 21 With Asherman’s Syndrome
Current city you live in: Los Angeles, CA
What condition/ailment are you living with?
I’m living with Asherman’s Syndrome.
Can you give us a little background on the condition? What are the symptoms?
Asherman’s Syndrome is scarring or adhesions on the uterus caused by a D&C from an incomplete miscarriage or an abortion. In my case, an abortion. Symptoms can include lighter or no periods, painful cramping during periods and infertility. I have painful periods because the scarring in my uterus blocks the blood from exiting and I am now infertile.
When were you diagnosed?
About 5 months ago.
Were you already experiencing symptoms when you were diagnosed?
Yes, I had uncharacteristically painful periods after my abortion and when I went to see a new doctor they did a hysteroscopy when they suspected it might be Asherman’s Syndrome.
How does this condition affect your life?
The condition only truly affects me when I get my period. My cramps are extremely painful and require strong pain medication
I will need to get surgery to hopefully remove some of the scarring. And even if the surgery is successful, it is unlikely that I will ever be able to have children.
Does it require medication? Does the medication have side effects?
I have pain pills for the intense cramps. They can make me very loopy and high.
What is the hardest part of having the condition for you personally?
I never wanted children, but the hardest part about this condition, besides the pain, is losing my choice to have children if I ever did change my mind. I feel like it’s a pretty fucking cruel irony sometimes, that I lost my ability to have children due to a complication from an abortion.
How does this condition affect you differently being younger compared to those who are diagnosed when they’re older?
I will never have the option to have my own children.
What do you do personally to cope?
Honestly, I try not to think about it. If my pain pills don’t work (sometimes they aren’t strong enough) I smoke a bunch of weed. I try to focus on the doors that have opened in my life now that I can count children out of my future.